{"id":8531,"date":"2026-02-06T09:36:17","date_gmt":"2026-02-06T08:36:17","guid":{"rendered":"https:\/\/isisdiabete.local\/diabete\/?page_id=8531"},"modified":"2026-02-16T10:05:28","modified_gmt":"2026-02-16T09:05:28","slug":"transparence","status":"publish","type":"page","link":"https:\/\/isisdiabete.demo-en-ligne.com\/diabete\/transparence\/","title":{"rendered":"Transparence"},"content":{"rendered":"\n
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TRANSPARENCE sur l\u2019utilisation des donn\u00e9es<\/h2>\n
\n

dans les \u00e9tudes men\u00e9es ou promues par ISIS.<\/p>\n <\/div>\n <\/article>\n\n

\n
    \n
  • \n \"\"\n
    \n
    Traitement des donn\u00e9es<\/h5>\n

    ISIS conduit des projets de recherche visant \u00e0 am\u00e9liorer la prise en charge des patients. Dans ce cadre, certaines \u00e9tudes impliquent l\u2019utilisation de donn\u00e9es de patients suivis ou de recherches promues par ISIS. Ces donn\u00e9es sont collect\u00e9es et trait\u00e9es dans le strict respect des r\u00e8glements en vigueur en mati\u00e8re de protection des donn\u00e9es personnelles et de recherche clinique.<\/p>\n<\/div>\n <\/div>\n <\/li>\n <\/ul>\n

      \n
    • \n \"\"\n
      \n
      L\u2019utilisation des donn\u00e9es<\/h5>\n
        \n
      • Les donn\u00e9es concern\u00e9es sont exclusivement utilis\u00e9es pour r\u00e9pondre \u00e0 la question de recherche d\u00e9finie dans le protocole de l\u2019\u00e9tude. Les \u00e9tudes respectent les exigences d\u00e9ontologiques et r\u00e9glementaires, et sont valid\u00e9es par un Comit\u00e9 d\u2019\u00e9thique lorsque requis. Par ailleurs, les traitements de donn\u00e9es sont d\u00fbment d\u00e9clar\u00e9s et conformes aux autorisations de la Commission Nationale de l\u2019Informatique et des Libert\u00e9s (CNIL) ou de tout autre organisme comp\u00e9tent.<\/li>\n
      • Le traitement des donn\u00e9es est effectu\u00e9 par ISIS via des plateformes s\u00e9curis\u00e9es garantissant la confidentialit\u00e9 et l\u2019int\u00e9grit\u00e9 des informations. Seul le personnel habilit\u00e9 d\u2019ISIS, ou les partenaires scientifiques mandat\u00e9s, ont acc\u00e8s aux donn\u00e9es de l\u2019\u00e9tude. Aucun transfert de donn\u00e9es non autoris\u00e9 hors des infrastructures de s\u00e9curit\u00e9 n\u2019est r\u00e9alis\u00e9. La dur\u00e9e de conservation des donn\u00e9es est limit\u00e9e \u00e0 la p\u00e9riode n\u00e9cessaire \u00e0 l\u2019\u00e9tude et conforme aux obligations l\u00e9gales.<\/li>\n<\/ul>\n<\/div>\n <\/div>\n <\/li>\n <\/ul>\n
          \n
        • \n \"\"\n
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          Droits des patients<\/h5>\n

          Les patients concern\u00e9s disposent de droits d\u2019acc\u00e8s, de rectification et d\u2019opposition concernant l\u2019utilisation de leurs donn\u00e9es. Ces droits peuvent s\u2019exercer en contactant le D\u00e9l\u00e9gu\u00e9 \u00e0 la Protection des Donn\u00e9es Personnelles d\u2019ISIS \u00e0 l\u2019adresse suivante : dpo@isis.fr ou par courrier \u00e0 :
          \nIDS, 82 rue Villeneuve, 92110 CLICHY.<\/p>\n

           <\/p>\n

          Pour toute information suppl\u00e9mentaire ou en cas de r\u00e9clamation, les patients peuvent s\u2019adresser \u00e0 la Commission Nationale de l\u2019Informatique et des Libert\u00e9s (CNIL) via son site www.cnil.fr ou par t\u00e9l\u00e9phone au 01 53 73 22 22.<\/p>\n<\/div>\n <\/div>\n <\/li>\n <\/ul>\n <\/article>\n <\/div>\n

          \n
          \n \"\" <\/figure>\n <\/div>\n <\/div>\n\n
          \n\n <\/div>\n<\/section>\n\n\n
          \n
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          \n

          Projets de recherche en cours<\/h2>\n <\/div>\n
          \n \r\n \r\n \r\n \r\n \r\n \r\n
          Etude<\/th>\r\n Objet<\/th>\r\n Responsable de traitement<\/th>\r\n Annees d’extractions<\/th>\r\n Fondement juridique<\/th>\r\n <\/tr>\r\n <\/thead>\r\n
          RAPPID<\/th>\r\n Suivi en vie r\u00e9elle de l’activit\u00e9 physique de patients DT1 sportifs \u00e9quip\u00e9s d’une pompe \u00e0 insuline avec DAI<\/td>\r\n ISIS<\/td>\r\n 2023-2025<\/td>\r\n Int\u00e9ret L\u00e9gitime<\/td>\r\n <\/tr>\r\n\r\n \r\n
          OPALINE<\/th>\r\n Evaluation en conditions r\u00e9elles de prise en charge, de l\u2019impact du traitement par pompe \u00e0 insuline associ\u00e9e \u00e0 un outil de mesure du glucose interstitiel sur la qualit\u00e9 de vie de patients adultes DT1 pr\u00e9c\u00e9demment trait\u00e9s par multi-injections.<\/td>\r\n ISIS<\/td>\r\n 2023-2025<\/td>\r\n Int\u00e9r\u00eat L\u00e9gitime<\/td>\r\n <\/tr>\r\n\r\n <\/tbody>\r\n<\/table>\r\n <\/div>\n <\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-8531","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nTransparence - ISIS DIABETE - D\u00c9MO<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/isisdiabete.demo-en-ligne.com\/diabete\/transparence\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Transparence - 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